For those with rare conditions, the journey from timely diagnosis, care, testing, services and treatment can be an isolating experience and one that is fraught with worry when tackled alone.
It doesn’t have to be like this, which is where Genetic Alliance UK come in. As an alliance of over 200 charities and support groups working together, they do great work ensuring that this journey isn’t taken alone by improving the lives of people in the UK with genetic, rare and undiagnosed conditions.